The Eyes

The eyes tell a story! No matter if you are smiling or not! Your eyes are still speaking.

What are they saying?

For some they tell of a long day, hard past, loss and loneliness.

For others they tell of how they are feeling in that moment. It may be the external circumstances they are in or their internal struggle.

What do you think my eyes are saying in these pics?

I’ll tell you!!! They are saying I’ve dined sufficiently over the last few days and I’m still sluggish from the events of the week. They are telling you that I’m not feeling my best, but I’m determined to keep going. I will never give up!!!💪🏽💪🏽💪🏽💪🏽💪🏽

What are your eyes saying today???

#sick #lupus #lupusflare #lupusawareness #lupuswarrior #lupusfighter #lupusadvocate #spoonie #spoonielife #spooniesupport #spoonies #spooniefamily #spoonielove #spooniesisterhood #spooniecommunity #fibromyalgia #fibromyalgiaawareness #potssyndrome #autoimmunedisease #chronicillness #chronicpain #angelslupusjourney #chronicfatiguesyndrome #chronicfatigue #chronicpainwarrior #chronicfatiguesyndromeawareness #transparency

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The Day After The Day After

Today is the day after the day after! If you don’t get it, go check out my last post!

Sometimes this day can be harder than the day before, especially if you have something you need to do. You see, you rested all day yesterday and your body started to recuperate and got really comfortable (as comfortable as someone who is always in pain and exhausted could be.) Today you had to force yourself to get up and start your normal regimen so you can have some consistency and order to this crazy life.

Here is how my day started:

1. I opened my eyes and told the Lord thank you for waking me in my right mind and asked him to take away the pain so I could at least sit up.

2. After 20min, I sat up, only to realize my hands, feet and legs were numb so I began to rotate them to get some feeling.

3. Once I got some feeling, I had to bend my legs back and forth and do my Exercises per my normal routine.

4. Then I could finally go get in the shower.

The list goes on….

Reality is, it takes all we have and who knows how many spoons to just get up and ready on a regular day, but after an event, it’s even harder.

I’m not telling you this for your sympathy. I truly want you to understand us and our bodies.

If you have a better understanding then you will be able to treat us accordingly, cut us some slack, put on some extra patience, love on us a little more and celebrate that we got up!!! That’s a victory and a half!!!💜💜💜

Hours later, I’m up and out of the house. I will sing at a funeral and then rest again, but y’all through all of the aches, pain, swelling, fever, dizziness, nausea and exhaustion, I GOT UP and I LOOK GOOD if I have to say so myself!!!💁🏽‍♀️

Have a blessed day!!!🥰🥰🥰

#sick #lupus #lupusflare #lupusawareness #lupuswarrior #lupusfighter #lupusadvocate #spoonie #spoonielife #spooniesupport #spoonies #spooniefamily #spoonielove #spooniesisterhood #spooniecommunity #fibromyalgia #fibromyalgiaawareness #potssyndrome #autoimmunedisease #chronicillness #chronicpain #angelslupusjourney #chronicfatiguesyndrome #chronicfatigue #chronicpainwarrior #chronicfatiguesyndromeawareness #transparency

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The Day After

As spoonies the day after a big event no matter what it is or how much or little work you personally did, you are exhausted as if you ran a whole marathon!!!!

It isn’t so much the physical activity itself, it’s a combination of adrenaline, emotions, excitement and movement.

We are so excited to get out and celebrate with our family and friends that we just go as if we are well. Yes, we always remember we are sick because we feel the pain and still have our struggles, but in those moments those things seem less important since we are finally out among the well and are able to enjoy ourselves; even if it is for a short time.

We look forward to these occasions way before hand and we are so thankful when they arrive; however, the day after when the adrenaline has stopped running wild, we feel the immense impact of the day before.

Don’t get me wrong, we regret nothing and will do it again on the next holiday, but just be patient with us when we need the whole next day or a few days to recuperate!!!

We got to be semi normal for the day so don’t ruin it with fussing and telling us how we need to rest. Trust, we know, but just as you need these days with your loved ones, we do too!!!

It’s the day after and I have enjoyed my rest!😜

#sick #lupus #lupusflare #lupusawareness #lupuswarrior #lupusfighter #lupusadvocate #spoonie #spoonielife #spooniesupport #spoonies #spooniefamily #spoonielove #spooniesisterhood #spooniecommunity #fibromyalgia #fibromyalgiaawareness #potssyndrome #autoimmunedisease #chronicillness #chronicpain #angelslupusjourney #chronicfatiguesyndrome #chronicfatigue #chronicpainwarrior #chronicfatiguesyndromeawareness #transparency

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What does Lupus look like?

What does Lupus look like? I’m glad you asked.

Lupus does not have a specific look. There are times you can’t physically tell that someone is fighting Lupus.

Sometimes we look ill, but other times we look okay; however, our bodies are attacking itself and fighting hard DAILY!

As the holidays approach, make sure you are sensitive, encouraging, understanding, loving and caring to your friends and loved ones.

No matter how they appear, they are still sick and fighting hard!💜💜💜💜

#sick #lupus #lupusflare #lupusawareness #lupuswarrior #lupusfighter #lupusadvocate #spoonie #spoonielife #spooniesupport #spoonies #spooniefamily #spoonielove #spooniesisterhood #spooniecommunity #fibromyalgia #fibromyalgiaawareness #potssyndrome #autoimmunedisease #chronicillness #chronicpain #angelslupusjourney #chronicfatiguesyndrome #chronicfatigue #chronicpainwarrior #chronicfatiguesyndromeawareness #transparency

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Reality Check

Reality Check‼️‼️

In order to look the way I do in these pictures, I have to take all of the meds you see in the picture! The picture is excluding my infusions I give myself every other day and my injection 💉 I give myself weekly!

I look good right?! Yes I know, but it takes a whole lot for me to look this good!!!

Some days I don’t look good at all (today is one of those days.)

No matter the day, please be cognizant and pleasant to everyone you come in contact with. You never know what they face daily or what it took to get them to the place they are when you come in contact with them.

Stop assuming and making judgments based off of looks. You will probably be wrong in your assumptions almost every time!

This is my life daily and I bet you had no idea!💁🏽‍♀️

DON’T pity me, just be KIND to me and others!!!!🥰🥰🥰

#sick #lupus #lupusflare #lupusawareness #lupuswarrior #lupusfighter #lupusadvocate #spoonie #spoonielife #spooniesupport #spoonies #spooniefamily #spoonielove #spooniesisterhood #spooniecommunity #fibromyalgia #fibromyalgiaawareness #potssyndrome #autoimmunedisease #chronicillness #chronicpain #angelslupusjourney #chronicfatiguesyndrome #chronicfatigue #chronicpainwarrior #chronicfatiguesyndromeawareness #transparency

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Somewhere Over The Rainbow

As we all awoke this morning, some feeling amazing, some riddled with pain, we must make a choice. Will we choose to be happy in spite of or will we choose to complain and be in a rut all day?

You see, your daily mindset determines the face of your days, weeks, months and years. You can’t expect to flourish in life with a negative disposition. How can you reach your goals and beyond when you are always a grinch?

Your positivity doesn’t go unnoticed! As a result of your choice to shine your light bright, your dreams just may come true. People are drawn to light! The brighter your light, the more others want to be in contact with you!

This certainly doesn’t mean you aren’t entitled to bad days! We are all human and some days, we want to hit the restart button. In all transparency, today is that day for me; however I have a choice to make. Will I allow this bad day to defeat me and change my character or will I try to push through finding that inner light and focus on my future, dreams and aspirations?!

Who said you can’t have dreams and aspirations??? Whoever it was lied to you.

Let your dreams and aspirations drive you to walk in positivity and light!!! Let them be your rainbow! 🌈

The song writer wrote, “Somewhere over the rainbow

Way up high

And the dreams that you dream of

Once in a lullaby

Somewhere over the rainbow

Bluebirds fly

And the dreams that you dream of

Dreams really do come true”

Focus on that rainbow, whether a good day or bad and watch your dreams come true!!!! That’s exactly what I will be doing today!!!

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Loving The Skin I’m In

Loving the skin you’re in doesn’t mean you think you are perfect. It simply means, you love YOU despite your flaws, downfalls and setbacks! You realize you came this far by faith leaning on the Lord! If it had not been for him on your side, who knows where you would be!!!

No matter the aches and pains, scars, hair loss, extreme fatigue, etc., I love every last bit of me!! I am who I am because of all that I am currently and have previously gone through!!!

If you don’t love you, how can you expect someone else to???

Self love is the best love!!!

Love on yourself today!!!🥰🥰🥰💜💜💜💜

#sick #lupus #lupusflare #lupusawareness #lupuswarrior #lupusfighter #lupusadvocate #spoonie #spoonielife #spooniesupport #spoonies #spooniefamily #spoonielove #spooniesisterhood #spooniecommunity #fibromyalgia #fibromyalgiaawareness #potssyndrome #autoimmunedisease #chronicillness #chronicpain #angelslupusjourney #chronicfatiguesyndrome #chronicfatigue #chronicpainwarrior #chronicfatiguesyndromeawareness #transparency