COVID-19

I have been seeing mixed opinions on the COVID-19 Pandemic and I have tried my hardest to keep quiet, but…..

A lot of you feel that people, social media, reporters, etc. are sending people into panic mode for no reason, while others are upset that people aren’t panicking enough. Each opinion, is just that, your opinion. No need to argue or fuss with one another. Take your opinion and do what’s best for you and your loved ones. God is not in the midst of confusion and there is confusion everywhere concerning this.

The fact that we all are discussing the virus, means there is some level of concern across the board. If you don’t care about something, you don’t converse or argue about it. 🤷🏽‍♀️

With all of this being said, we might not all agree, but let’s be considerate and respect each other’s opinions. Focus on what you can do to help!

Of course wash your hands and take precautions, but also don’t put yourself or others in compromising positions. Remember that although the death rates are low compared to the infection rates, there has still been deaths. Realize that there are many immunocompromised individuals all around and your failure of concern or lack of taking proper precautions can hurt those individuals.

This is bigger than a debate of the seriousness of the virus or even opinions on its origin. No matter the strength of the impact you personally are facing, there is still an impact thus presenting an opportunity to come together and do all we can to ensure the safety of everyone!

Let’s band together choosing to use caution, patience and love as we fight this virus!!!

I will continuously pray for you all and I ask you to continuously pray for me! 🙏🏽🙏🏽🙏🏽🙏🏽

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My Day

Hey #teamangelslupusjourney !!!!
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Let’s be transparent and talk about my day!
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As you all know, I give myself the #benlysta injection every Sunday. As a result, Monday is always a day of rest for me.
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Today has been very difficult. Although I have taken the injection for months now, this time was different. I am experiencing an ongoing, red, raised rash that does go away as long as Benadryl is in my system, pain, nausea, etc. more than usual. I have truly struggled. Where these symptoms have been present in the past, this time they are 10x worse than before.
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I’m not sure why this time was so rough, but isn’t that how Lupus is anyway?! One moment you are doing ok and the next, you’re sick as a dog. There isn’t a rhyme or reason for the drastic, sudden change, but it still happens!🤷🏽‍♀️
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This is our reality! I know it doesn’t make sense, but it is our truth! We don’t understand it either; however, we have to live it and attempt to keep going. Welcome to our reality!!!!
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I am going to bed for the night! Yep, it’s early, but I have to do what I have to do!!!💪🏽💪🏽💪🏽💪🏽💜💜💜💜
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I love you all with the love of Jesus! May your tomorrow’s be better than your yesterday’s!!! Love, Angel 👼🏽
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sick #lupus #lupusflare #lupusawareness #lupuswarrior #lupusfighter #lupusadvocate #spoonie #spoonielife #spooniesupport #spoonies #spooniefamily #spoonielove #spooniesisterhood #spooniecommunity #fibromyalgia #fibromyalgiaawareness #potssyndrome #autoimmunedisease #chronicillness #chronicpain #angelslupusjourney #chronicfatiguesyndrome #chronicfatigue #chronicpainwarrior #chronicfatiguesyndromeawareness #transparency #dysautonomia #dysautonomiaawareness

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Queening 👑

The definition of a Queen is a woman or thing regarded as excellent or outstanding of its kind; according to the dictionary. A Queen is resilient, unapologetically them, walking in confidence despite anyone else’s opinion, a positive role model, one who views herself as more than a conqueror even when the odds are stacked against her. A Queen sees her own beauty, even in her scars. A Queen stands proud and will never be defeated.

I am a Queen 👸🏽
Lupus doesn’t have me; I have it!
I am victorious!
I walk with boldness and know my worth!
I will overcome every obstacle out to destroy me!
No weapon shall prosper against me!
I am a Queen 👸🏽 and I don’t need anyone’s validation!
I am SHE and SHE is ME! 👑 👑 👑


You too are Queens 👸🏽 and kings 🤴🏽! Own it!!!

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Behind Our Smile

Sometimes it’s easier to smile than to show the world your true emotions. The smile hides our vulnerability and our fears. The smile camouflages our sickness and keeps others from pitying our situation. Most of us truly hide behind these beautiful smiles!

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I encourage you to praise our beautiful smiles, while continuously praying for us daily. Sometimes it’s the strongest people who are hurting the most. We are strong. We are Warriors, yet we are still human so pray our strength to keep fighting these illnesses even when it seems unbearable. Pray the manifestation of our healing is on its way. Pray that we continue to smile, but the smile be as a result of happiness. Lift us up in prayer because this battle is hard and seems to be never ending.

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Every time you see me smile, please send up a prayer on my behalf! TIA🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽

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I love you all with the love of Jesus! May your tomorrow’s be better than your yesterday’s!!! Love, Angel 👼🏽

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#sick #lupus #lupusflare #lupusawareness #lupuswarrior #lupusfighter #lupusadvocate #spoonie #spoonielife #spooniesupport #spoonies #spooniefamily #spoonielove #spooniesisterhood #spooniecommunity #fibromyalgia #fibromyalgiaawareness #potssyndrome #autoimmunedisease #chronicillness #chronicpain #angelslupusjourney #chronicfatiguesyndrome #chronicfatigue #chronicpainwarrior #chronicfatiguesyndromeawareness #transparency #dysautonomia #dysautonomiaawareness

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Making Plans For A Spoonie

How is she/he feeling?

How has their week been?

What is best for their health?

Those questions should be among the first questions you ask yourself before planning anything for your spoonie spouse. You see, we can’t predict how we will feel daily. Shucks, we can’t predict the next minute.

Does this mean you shouldn’t plan anything? No, it simply means when making your plans consider your spouse, their overall health, their desires, their known capabilities and then allow room for change if/when necessary.

What does your spouse like to do? Is it something that is feasible and if they aren’t up to it, can the activity be done at home? For example, although your spouse loves to go to the movies, if they are feeling poorly, bring the movie, popcorn, nachos, candy, etc. to them.

Be willing to compromise, make adjustments as needed without judgement, respect their limitations while capitalizing on their abilities.

Be sure to reassure your spouse that you love them regardless of their illness and the most important thing to you is spending time and being able to show them how much you adore them.

You won’t loose if you truly take your time to pay attention, research the illness for yourself, consider your spouses current state, recognize your demeanor can either positively or negatively affect your spouse so handle them with care, realize they don’t have control over the illness, understand that things can change swiftly and drastically, and above all else, shower them with love and support reassuring them that they are enough, illness and all!

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Flawed

We live in a world where admitting we aren’t perfect is viewed as admitting weakness. People don’t want to look weak, uneducated or like they don’t have it all together when in all reality people who display humility are more respected than those who think they are the smartest person in every room.

The truth is, we are all flawed whether you want to admit it or not. There is always room for improvement. There will always be areas in our lives we need to re-evaluate and revamp. No one is exempt from this.

The faster you realize this, the faster your life and how others view you will change.

Living with a chronic illness at times magnifies our flaws. We can’t run from our imperfections whether physical or mental. Because of this it is imperative to be able to look at ourselves, acknowledge our wrong doings and strive to be a better us.

Why you ask?!

We don’t need anything else weighing us down. We already have the weight of the world and health on our shoulders. We are already aware of our flaws and adding to them by thinking we are always right and don’t have room for improvement will only damage our psyche more than the reality of living with a chronic illness has already done.

We already struggle with our self image physically due to our many scars as well as mentally as we battle feeling like burdens and beat ourselves up for the things our health prohibits us from doing. Admitting our wrong doings releases us from having to be defensive every moment of our lives because although it is easy to appear like our poop doesn’t stink, we know it smells awful. In turn, stress of having to have this perfect performance makes us sicker. God knows we don’t want or need that.

Admitting wrong doings and correcting one’s behavior is not limited to those living with chronic illnesses. People as a whole are more approachable, valued and truly respected when they can admit they are wrong.

Reality is, everyone around you realizes you are wrong whether they tell you to your face or not. Some people are afraid of what you are capable of since you can keep up this perfect facade and they choose not to say anything, while others don’t see the point because they don’t think you will change. They expect you to try to justify your bad behavior and recognize you are just one of those people you have to handle with a long handled spoon.

I encourage everyone reading this article, whether living with a chronic illness or not, to take a moment to self reflect and have a honest conversation with yourself. You are human and are inevitably going to be wrong at times; however, it is up to you how you decide to handle it.

My suggestion is to take a humility pill, be careful how you address others, repent for your bad behavior and make a clear positive change so that you can organically receive the love and respect you are looking for to begin with.

SN: If this article convicts you or makes you believe it could possibly be written about you, then yes it was and you have an opportunity to make a change. I hope you do so…..

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Love Yourself

Self love is preached and screamed from the mountaintops. We hear about how we should love all of ourselves on TV and on the radio. We see campaigns across social media. It is truly apparent that we should love ourselves wholeheartedly and the world seems to support this cause.

So why is it so hard to do?!

We all have things we love about ourselves and then there are those things we truly hate. Yes, hate and I know it’s a strong word. We should never despise anything about ourselves that much to say we hate it.

The fact of the matter is, we as a people are still struggling with self love! To go even deeper, we as people living with chronic illnesses struggle with self love.

I know that no one wants to be vulnerable and talk about it, but it’s true. We hate more than one thing about ourselves.

Some of us hate something about our appearances, while others hate ourselves for being sick.

We hate that we have lost hair and teeth due to sickness or medicine. We hate that the medicine that is supposed to make us feel better has made us gain 100 pounds and put hair on our faces. We hate that we bear scars in noticeable places. We don’t feel attractive and we just hate how we look.

We hate that we can’t do the things others can so we in turn hate ourselves and put ourselves down. “You aren’t worth anything.” “You will never be anything more than a burden.” “Go ahead and end your miserable life.”

It’s a terrible thing when YOU don’t like YOU. How can anyone else like you if you don’t like yourself?

It’s time for you to snap out of it and realize who and whose you are. You are first a child of the King and he doesn’t make junk. You are beautiful or handsome. Your scars tell a story of your bravery and make you more attractive. Your hair loss and whatever else shows that you have fight and that in itself is an attribute so many wish they had. Your story is an inspiration to others and your drive is more than goals. You are looking at sickness like it took you away, but it created a better, stronger you.

Love yourself because you are amazing! Love yourself because no one could make it through your trials and tribulations like you. Love yourself because you realize that when you love you, you exude confidence that is more than attractive. Love yourself because there is beauty in all your scars. Love yourself because you are the best thing ever and you will win your battle.

Let this be your recharging moment to restore and replenish all love lost for yourself and you should come out better than you ever were.

Love yourself because you deserve all the love in the world!

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