May 2020 LAM
Here I was 12 yrs old seeing an Oncologist, Hematologist, Rheumatologist and so forth, being told no one had any idea what was wrong with me. They didn’t know why I was severely fatigued or how I so easily bruised or even why I had a funny-looking rash on my face and experienced unusual body aches/pains. One day I was healthy and the next after having a virus, was severely ill. Doctors didn’t want to diagnose me with lupus because of my age even though my labs and symptoms screamed lupus. *
Now 20 + years later, I have had 13 surgeries including 2 Cardiac Catheterizations, Pulmanary Emboli, Pericardial Effusions, Blood Transfusions, Iron Infusions and the list goes on. I currently take 32 pills a day, infuse myself every other day with 1.5 liters of saline through my port and administer the Benlysta injection to myself weekly. As I fight this illness, it is my desire to spread awareness as well as hope and empower others who are fighting also.
I am now not only advocating for myself, but for others who didn’t have a proper diagnosis and adequate, effective help. Over the years I have been diagnosed with many other illnesses as a result of the attack lupus has had on my body. At the blink of an eye my life changed without my control. Today, I take control over the future of my story, the best I can, by making sure others are educated. Hopefully my voice will change at least one person’s life as we fight together and win against this cruel invisible disease.
lupus #lupuswarrior #lupusawareness #lupusawarenessmonth #lam @lupusorg
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