Chronic Illness Is So Hard

Living with a chronic illness is one of the hardest things ever. You never know what the day will bring and you don’t have many (I don’t remember the last time) days without some type of ailment.

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Lupus, Fibromyalgia and POTS have changed my life. They determine my days, from if I can move to what I can do.

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You all see me all made up on the weekend, but what you don’t see is that in order for Lupus to allow me to get up, I had to spend the whole week in bed in preparation. My doctor appointments even exhaust me.

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Even on the weekend I am fighting hard and pushing to smile and go. The pain doesn’t stop because you have something to do or it’s a holiday. Bills don’t stop, right? Well, sickness doesn’t either. I just choose to smile and be thankful that I’m still alive!

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Today, I am struggling. I’m feeling worse, not better. I will see the doctor again tomorrow and have bloodwork done.

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Let me be clear though! You may see me in bed with a smile on my face today or tomorrow, but that does not mean I’m better. What it does mean is I am a Warrior Princess that never crumbles no matter what is thrown at her.

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I don’t want pity and you don’t have to tell me you are sorry I am going through this. What I need from you is to keep me lifted in prayer whether I’m smiling or not, never assume anything, ask me how I’m feeling vs telling me I look better or worse, don’t tell me what I need to be doing because it gets overwhelming when it comes from all over, be patient and always speak in love! Those things right there will make my journey so much easier and I thank you in advance!

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I love you all with the love of Jesus! May your tomorrow’s be better than your yesterday’s!!! Love, Angel 👼🏽

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#sick #lupus #lupusflare #lupusawareness #lupuswarrior #lupusfighter #lupusadvocate #spoonie #spoonielife #spooniesupport #spoonies #spooniefamily #spoonielove #spooniesisterhood #spooniecommunity #fibromyalgia #fibromyalgiaawareness #potssyndrome #autoimmunedisease #chronicillness #chronicpain #angelslupusjourney #chronicfatiguesyndrome #chronicfatigue #chronicpainwarrior #chronicfatiguesyndromeawareness #transparency

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