There is a saying that says, “The truth shall set you free!” What does it set you free from you ask???
The truth sets you free from the misconceptions of the world. The truth sets you free from the assumptions others make about you because you have chosen to be silent. The truth sets you free from the oppression of societies expectations of what being sick looks like. The truth sets you free from your false facade you manage to uphold to save face. The truth sets you free from the bondage of others as well as yourself. The truth shall set you free!
The truth is, you are fighting to survive daily despite how “good” you look. The truth is, putting on makeup and dressing up is a part of your routine to hide the dark circles under your eyes from exhaustion and to hide the fact that underneath those clothes are many scars. The truth is, you will use anything to distract others from seeing the “real” you. The truth is, you don’t want them to see you for your illness and pity you. The truth is, if you push hard to be the same as them, then you have a lessened risk of them walking out your life because you are chronically ill. The truth is, you rather put yourself through hell just so you can avoid being judged. The truth is, you feel inferior to all around because they can do more than you. The truth is, the highlight of your day is your support system coming home because loneliness and self pity has the potential to drive you insane. The truth is, you are a hot, emotional wreck that is hanging on by a thread. The truth is, you worry about yourself, but you can’t mention it because you are afraid of people’s reaction to your state of mind. The truth is, this life is not for the faint of heart. The truth is, you are not ok and you need support in order to be prosperous.
That means the people surrounding you must be understanding and be open to researching your condition. That means they have to be patient with you realizing each day presents itself differently. That means they have to be empathetic at all times no matter their mood because that one moment when they are not empathetic, can be the moment you break. That means as tired as they are from their day, they have to take the time to be attentive to you understanding their presence has been what has driven you to make it through each day. That means that they have to make you a priority realizing that is a big deal to someone who feels abandoned and alone. That means they have to step out of their comfort zone and be whatever it is that you need them to be. That means that they have to truly care about you and become selfless. That means they have to be cut out to handle such a tall task.
The truth is, being connected to someone with a chronic illness is an important and trying job, but there are many who choose to be those things and more.
The truth is, you deserve a great support system because despite your illness you are everything you ask of others and so much more.
If someone does not treat you the way you should be treated and does not support you, you don’t need them.
Just because you have a chronic illness does not mean you have to settle for being treated like a burden and chore. You don’t have to take judgements or put downs because you can’t do or need more help than the average person.
There are some people out there who are willing to be everything you could ever ask or imagine and you deserve to have those people in your life.
The truth of the matter is, you need to realize your situation is not your destination and you want the best people to make it to your destination with you! Stop allowing people to make you feel less than because you are ill. Take back control over your life and choose who is worthy to be a part of it!!!
The truth is, not everyone can go where you are headed. Reevaluate your truth and allow it to set you free!!!!
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Angel’s Lupus Journey 