Who We Are

I don’t look sick, but I am.

I don’t look tired, but I am.

I look healthy, but I have many medical conditions.

I look normal, but I’m far from it!!

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Reality is, everything you think I am, I’m not and everything you think I’m not, I am.

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Don’t try to judge me based on what you see because living with an invisible disease is so deceptive!!!!

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We fight for our lives daily, hourly, second by second! We look like we are just resting, but our bodies are on hyperdrive fighting as hard as it can!!!

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We are tired from the time we get up until the time we go to sleep. We want to do so much, but our bodies limit us without regard to our thought process or wants!

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We deal with the punches and smile every step of the way!!!

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We rather cry in private than show our vulnerability and pure exhaustion!!!

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Stop comparing yourself to us because we are not the same!!! Stop judging us and simply love and cherish each moment you are able to spend with us!!!

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We are Warriors, Fighters, Hero’s and it is a gift that you have the opportunity to know and love us!!!

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#lupus #lupusflare #lupusawareness #lupuswarrior #lupusfighter #lupusadvocate #spoonie #spoonielife #spooniesupport #spoonies #spooniefamily #spoonielove #spooniesisterhood #spooniecommunity #fibromyalgia #fibromyalgiaawareness #potssyndrome #autoimmunedisease #chronicillness #chronicpain #angelslupusjourney

2 thoughts on “Who We Are

  1. Well said!!! Thank you for this 😊
    I’ve just started a blog on my experience with chronic illness & how I use art & craft to help me deal. Maybe you’d like to check it out? Either way, thank you for the great post, new subscriber here! T.

    Like

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